Showing posts with label Temple grandin. Show all posts
Showing posts with label Temple grandin. Show all posts

The Photographers Kids! {Taking Pictures Of Aspies}



     For couple of professional photographers you would think that we would have awesome family photos all over our home! I mean really, pictures is all we do 7 days a week 365 days a year! Nope! The last photo with all four of us in it was about 4 years ago. Not only is it hard to pay someone to do what you do for a living but it's also that fact that after taking thousands of photos a month you have a style you like. All that being said it adds a layer of difficulty to the task when you are dealing with any kid with special needs, I'm sure you all feel me there! You learn to love the picture of your little one looking off into space as long as there is a good smile or making that face that they always make! That's my style anyway, we have never been a fan of the Wal-Mart Portrait Studio 'Turn Your Head To The Right & Smile' style of photography. I hate that stuff! We did a promotion this fall where we did a massive amount of families in 30 min intervals in a pre-set scene. It was awesome! So why not throw our family in there, set the camera, & have someone push the button! (We have tried the timer function before & NOOOOOO way is that worth the trouble!) After seeing the end result as well as some others we snapped while warming up to do the family portrait I got to thinking how much easier it is now days than it used to be!
     I have photographed Jayden for a long time & we have photographed other kids on the spectrum, parents like it because they know I'm not going to get impatient or upset because I know what it's like working with autism. It's either a very slow stand offish process or a very high intensity in your face process! Either way they are some of my favorite shoots. I got to thinking, what have we done to work up to having Jayden take an amazing photo every time you point a camera in his face!
This was a fart sound induced smile!

  • The camera is always around! In one form or another we always have a camera & are shooting photos! After it becomes the norm then the camera is not some scary thing or a big deal at all.
  • Showing the picture! My own kids, sessions with kids on the spectrum, or even NT kids all the same I show them their picture! Let them see the end result & how great it is! Positive reinforcement!
  • No forced looks or smiles. This is actually easier for families on the spectrum because they are not so hell bent on an everyone smile & tilt your head to the left photo! Call it lifestyle photography, call it photojournalism, what ever just take it as it happens. That's when the real smiles come. Then it's just a matter of a stolen glance your way that's captured to make an amazing photo. 
  • Snap, Snap, Snap! I can go into a session with NT kids & come out with 700 photos & work that down to 60 amazing images. I pay my mortgage with photography & my camera cost me more than my first cars combined so maybe you shouldn't shoot 700 but always take a 'Better To Much Than Not Enough' mentality when it comes to shooting pictures. You can always delete the blurry ones & the ones of the back of their head!




Shopping Autistic {Do other parents buy 7lbs. of ketchup at a time?}

So I went shopping today....ugh!  One of the awesome things about me working a regular job was that I got to miss out of fun stuff like grocery shopping but since the big change when I left health care & went full time at our studio I can't dodge that bullet anymore. Off to Sam's Club we headed today! Who knew that little grocery elves didn't stock our kitchen over night!?! It was my wife the whole time! As we walked the isles I started to realize that this place is 1.) A must visit for parents of special needs kids who only eat a limited variety of foods. 2.) Its flubbin' ridiculous, at least I thought it was!!

As I strolled through I found myself looking at things, making off handed sarcastic comments, then realizing that's something we need! 

  • "7 pounds of fancy ketchup, what kind of person buys 7 pounds of ketchup!...well, shoot, we go through a sick amount of ketchup!"
  • "6 pounds of peanut butter! What? Oh yeah...I'll just put that in the basket!"
  • 72 pop-tarts!!! Really...72! Wait...3 kids eating pop-tarts for breakfast every morning, IF..IF they don't sneak a pop-tart as a snack or open the two pack & throw one away because when they open two 2 packs for 3 kids they can't think of anything to do with that 1 extra pop-tart than to throw it in the trash for some reason!! aaaahhhh!!! Anyway, at that rate they will last about...drum roll please... 3 & a half weeks!! 
$200 later I was informed that we really just got a "few" things & will be going back to the grocery store shortly because apparently my kids eat a 2005 Dodge Magnum full of food every couple of weeks! (Yes, that's how I'm measuring from now on! All that food filled up the back of the car so that's how I'm measuring now!) 



















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So...this pic should get across the full scope of my life! If I was fancy...If I was an artist....If I hung the  photograph below in a gallery...It would be titled....PARENTHOOD


Special Interest Alternative {Turning Off MineCraft Without A Fight}

Special Interests, I love them & hate them all at the same time! I'm happy there are things that he gets into but sometimes wish it were something other than video games. Yeah, there are other things he has an intense interest in but video games over shadows everything; eating, sleeping, school, even going to the bathroom. There are very few things that work when trying to get his mind off a game he is into, right now MineCraft, but we have found one thing! (Other than playing like we are characters from video games on the trampoline & do battle)

Anything I see that says MineCraft get a second look. While we try not to play into it to much because he will go overboard if you don't keep a pretty close eye on him. PaperCraft is an app for the iPhone & iPod Touch. (Not sure about iPad but probably that too) PaperCraft allows you to design your own MineCraft blocks, chests, guys (or what ever they are called), & anything else then you can print them out on paper. The app lays the 3D Mincraft object flat & gives easy to cut out & fold directions so you build it out of paper! It's pretty awesome! The one we downloaded is called Papercrafts for Minecraft & its free. There are many other including the official MineCraft PaperCraft Studio that costs $3.99. Now that I know what it is & how great it is we will probably be buying that one soon. It's a small win but a win I'll happily take to see him smiling & giggling to show us these little figures he has cut out, folded, & sometimes taped together. Before I let him download the app but after he had studied the info page for the app he even cut out & folded his own minecraft guy & was so proud of himself! I couldn't help but download it! When he is good, does something he is supposed to do, or is rewarded in anyway it's usually with video game time. (Usually on his iPod Touch) There are many times when he doesn't even play minecraft he just designs objects & then asks to print them out. I print out 5 or 10 & then the iPod gets put away by his own hand without me telling him to! That's a win!

I love his face while he is crafting! That's a happy kid!

Welcome To MAA {Minecraft Addicts Anonymous}

Minecraft! I'm not sure what to make of it. For the longest time everything was super realistic & the graphics blew my old video games out of the water but even my original Super Mario Brothers on Nintendo had better graphics than this. They love it though! Not only does Jayden love to play it but he also wants to watch it on YouTube. Just random other kids taking a videos of themselves playing minecraft is apparently almost as enjoyable as playing it.....what does that say about the game....

It's pretty well known, I spoil my kids pretty bad. If they are into something I usually find a way to be into it too. Minecraft is a bit tricky for me because its just not my thing but when they showed me a video from youtube some little genius put together that is him playing minecraft while another sings new words to I'm Glad You Came by The Wanted. Now, just to clarify I have know idea what I'm Glad You Came by The Wanted is but I think I've listened to it on a radio somewhere because it seemed very familiar. I'm a big fan of changing the words & making funny songs so this thing really got me! It's hilarious! You need to watch this video....your kids have probably already seen it but show them to, if they are into Minecraft! You will be a cool parent for about 3:18.


The boys asked to download an app on the iPod Touch so they could 'Mincraft' pictures that they take. Below are some of their proudest moments.

Zion in full MINECRAFT mode!


Samantha & I were Minecrafted!


My Interview With Dr. Temple Grandin

Hey, remember that time I interviewed Temple Grandin! Yeah, me too! The popularity of this blog amazes me. One of the major joys I get is talking with readers, helping where I can, & spreading autism awareness as thick as possible, everywhere possible. Getting the opportunity to call Temple & talk with her. To be able to give away the autographed copy of her book that I gave away last week, it's so awesome! I get a lot of emails thanking me for support or thanking me for help or just for spreading awareness but I wanted to say.....Hey.....you.....yeah, you.....Thanks! You're pretty awesome! Thanks for reading my blog!

My interview with Dr. Temple Grandin about her new book 'The Autistic Brain' 


ring ring....ring ring....(Sorry, lets jump forward a bit)
Me: Professor Grandin, thank you for taking the time out of your busy schedule to talk with me!
Temple Grandin: Okay, great great, good we've got a good signal right now. Let start right in to the interview while we have good signal. On this road the signal goes in and out

Me: That sounds great. One of the things I noticed while reading your new book 'The Autistic Brain' & with your other books as well but this new one most of all has a very conversational tone to it.  One of the first things my wife & I said to each other after reading through it was that it seemed like you were sitting across from us talking instead of reading like stereo instructions like allot of other books on the subject do. Was that something you were actively trying to accomplish or just how the book turned out?
Temple Grandin: I worked with Richard Panek who is a super super good, very well known, science writer and he was really able to get my voice.  How we did the book was really just doing hours upon hours of interviews. 

Me:  Back and forth between the two of you then he put them all down and laid them out into the books format?
Temple Grandin:  Yes, that's right.  Then I would get the articles, like in the section of the book where I talk about different kinds of minds, the very important papers that show there are two different kinds of visual thinking the object visual thinking and then the mathematical kind.  I found the papers that backed that up  that those really do exist.

Me:  That's interesting. It was really refreshing how it was laid out, easy to jump around and find the information you need.
Temple Grandin: Yes, well, I have to give Richard the credit for that.  One of the things about me is being such a visual thinker, the way I am, I tend to be very associative in how I think.  In some of my earlier books like 'Thinking In Pictures' series of chapters and things like that my editor, Beth, wanted to tear her hair out trying to organize it.  I've gotten a whole lot better at organization, I know make outlines and things like that.

Me:  In the book you talk at length about getting brain scans and MRIs from the start of when that technology was available. You talked about how during the first MRI the technicians told you what was going to happen to try and prepare you for the sitting still and loud noises.
Temple Grandin: I can remember the very first one I ever did, it was out at Eric Courchesne's lab in California. The technology was very very new, there were very few MRI machines in the whole world when I did that. Why do it!?!  You know it comes down to exploring!  I got to watch the most wonderful music video shot from space shuttle, I don't know if you've seen it or not, of the astronauts singing the David Bowie song.  It had really gorgeous pictures! You know, why even have a space station?  It's exploring! You know, I want to find out whats inside my brain! It's the same reason you want to go into outer space, you want to find out whats there.  Why did people climb Mount Everest originally? It's exploring. You know, I like to call it a journey to the center of my mind.  As each new technology came out I found researchers that were using them & I'd seek them out. Why did I do it? Well...I just wanted to look!

Me:  You mentioned in the book that the technicians explained what was going to happen while in the MRI.  It being loud & having to stay perfectly still.
Temple Grandin:  You have to lay absolutely still or it completely wrecks the scan. If you move you wreck the scan. They said I was really really good at that, laying completely still, they said I was one of the best!

Me: You talk, in the book, about teaching traditional manners & not letting a diagnosis be an allowance to skirt around having manners.
Temple Grandin: Yes!  You have to learn to take turns. A lot of these kids are very impulsive. These things were taught to me with board games. That was taught to ever kid in the 50's & board games were the way it was taught.  "You have to wait your turn!"  That was taught to me with a Parcheesi board. They've got to learn how to wait their turn. They also have to learn things like if the family goes out every Saturday and does some recreation thing & the autistic kid likes miniature golf, they can't do miniature golf every weekend because the other kids like to do skateboarding. That all comes down to taking turns. So, you do miniature golf every 3rd Saturday, when it's your turn to pick the activity. They have to learn that basic kind of stuff.

Me:  That is one of the things I loved! Sometimes it seems as if there is a push the other direction & letting to much of the diagnosis rule, that seems counter intuitive at times.
Temple Grandin: Yes, but you also have to be careful & no surprises! I think they need to be pushed to try new things but not brought on as a surprise. That causes panic. You have to look at and take into account some of the sensory problems. Some kids can not stand florescent lights.  At my birthday parties we didn't have noise makers. You know, it's things like that.

Me: Something I hear from readers & struggle with a lot having a child on the high functioning end of the spectrum is 'What is 9 year old boy & What is Autism?' Sometimes it a fine line between pushing them in the right direction & not over stimulating them.
Temple Grandin: Sensory issues are something you really have to watch. Like me, I can't stand scratchy fabrics in cloths. Old Navy changed the vendor on their black khakis & the new ones I can't stand. The ones I've got on right now are getting kind of raggedy and I've got to find another brand of pants I can way. Shirts, I have to ware t-shirts under them but pants are to hot to ware long underwear under them. So, I still have a problem with that. You have got to figure out ways to get around that kind of problem. There was an autistic kid who lost his job at a book store for not warring a tie. That's just really stupid because you can make ties so loose you can't event feel them. Get a shirt with a bigger collar and you put the tie on so you don't even know you have it on! I mean, to lose a job because of not being able to ware a tie is just like, get a bigger tie!

Me:  Talk about the new DSM & tossing out Aspergers, which is crazy, I wanted to know if you saw any positives in the future break down into more succinct categories of autism.
Temple Grandin: I think that the break down into just two categories, two types. You have the non verbal & the verbal.  I think as genetics & things like that get more advanced you will see a more specific subgroups of autism. The thing is when the kids are still little & you have speech delay at around two a lot are all the same but when you add early intervention therapy you see differences. Some start to become verbal. The Aspergers kids, in the old DSMs Aspergers had no speech delay. Now they have kind of muddied the waters on whether or not there is a speech delay. They have in a way made it less Persis. I would still be diagnosed as autistic with the new guide because of speech delay & I had many symptoms that are in the new DSM. You see the problem is that these new diagnostic things are not precis. There are other controversies about other categories as well. I was reading in the paper yesterday about to many kids being diagnosed with ADHD. What about little boys who just run around & wiggle anyway!?! These kids are not getting outside & exercising. My mom used to say 'Go outside & run the energy out of you!'

Me: That's right, that's why we bought a trampoline for our boys!
Temple Grandin: Yes, we were always out playing in the creek & building stuff or things like that when I was a kid.

Me: Is the gradual hope that with new technologies being introduced & advances with MRI or brain scans that we can have a more precis medical/genetic diagnosis procedure for autism.
Temple Grandin: Well, one of the scans that is around & has been around for the last 15 years is a scan of the social areas of the brain. You know, facial recognition areas. You can see those problems & the scan is not even that high tech anymore as far as they go. It's just not being used. There's hundreds of papers on it.

Me:  In preparing for this interview one of the questions I wanted to ask & a question some readers suggested I ask was are there still time you have problems even after all the progress,  I know you say in the book that you take a low dose anti-depressants, & with everything you know now are there still obstacles you have to consciously work to over come because of your autism?
Temple Grandin: One of the biggest things is that I've been on a very low does anti-depressant for 35 years because I had terrible panic attacks. Anti-depressants save me. Then on the other hand there are way to many drugs being handed out to 5 year olds & its just disgusting.
Me: I totally agree.
Temple Grandin: Sometimes I have to go over things in my head before head still.

Me:  Well, we only have a min left I just wanted to tell you what an honor it was speaking with you.
Temple Grandin: I just want to end by saying that people need to play to the kids strengths. One of the big things we have to do with these kids is teach job skills. The kids get to college but don't have any job skills. They have to learn about showing up on time. That kind of thing needs to start, I think, at about 12. Now that paper routs are gone maybe walking dogs is a good thing. They have to know that it has to be done every day! There is a discipline to that. Walk that dog every day whether you want to or not. The other part of the book that I think is important is where I talk about the different types of minds. Visual thinkers, mathematical thinkers, all of those you have to develop the strengths. Build up on that strength area. Things that you can turn into careers. That's a big message of the book. I want to see these kids today go somewhere & accomplish things. Autism is a big spectrum. You have these kids that are going to remain non verbal but you have these others that should be working in silicon valley but I'm seeing them play video games all day & not going anywhere. Now, if they want to learn how to program those games I'd be all for that!

Me: I think that's why the book struck such a chord with my wife & I is because its put so plainly, so easy to read. There's no medical jargon like a lot of other books.
Temple Grandin: Well, I can say for sure, anything I have to do with will never have jargon in it! I just go through & cut all the jargon out. I hate jargon!

Me: Well, thank you so very much for taking the time to talk with me today!
Temple Grandin: Thank you. I'm happy we could talk about it.


The book is amazing!  A straight forward understanding & answers book about Autism. It's the book I wish I had on the day my son was diagnosed with autism! 

You can get your copy over at Amazon. You can also see all the latest going on with Temple on her site TempleGrandin.com

An Autographed Copy Of The Autistic Brain By Dr. Temple Grandin! {& a summer fun post}


**First Thing Is First**
     This is the awesome part! As most of you read in my last blog post & on Facebook & on instagram, & on twitter, & on any bathroom wall I visited then you know I have the honor of interviewing Dr. Temple Grandin on June 19th! She has a new book out called The Autistic Brain. (Click on it to be taken over to Amazon) The second nugget of awesomeness is the extra autographed copy of the book she sent me to give a way to......lets see, who shall I pick...duck...duck...duck...No, there has to be an easier way! All you have to do is head over to my facebook page & share this photo<--- on your timeline! Yes, a shameless self plug I know but stopping people in the bathroom & telling them about my blog just doesn't get the word out like you would think! I'll pick a winner from the list of shares on facebook on Friday June 7th!

**On to a quick little blog post!**

     One more big 'Thanks' to all of you who sent messages, comments, or just thought "Hey, I hope that one guy who writes that one blog I read is okay...I think he lives in Oklahoma." Well, we are okay! We decided not to let the crazy weather get us down & after gathering & dropping off a car load of donations to the Red Cross we loaded up for summer awesomeness! I really want my kids to have the childhood that I had; backpacking, rafting, camping, & all that outdoorsy stuff but it's just not that way. After Jayden got into running club in school he is a bit more active so we tackled a nature hike to see how that would go! I was pretty surprised that we made it about 3 miles! Was there some crying? Were there times when whining could be heard? Was some of the belly aching coming from me? Yes, Yes, & OHHHHH Yes!
     We are really trying to get them out more & away from the TV, Wii, Skylanders, & any device that has MineCraft loaded on it! Jayden more so than the other two worries me with his inactivity. You really have to break an arm to get him outside, buying a trampoline helped a bit. So besides the nature park we also hit a park with ducks to feed, the Route 66 POP's Soda POP store, & some other fun stuff! Check out some of the fun below.
Outdoorsy...ish,,,
What started as a water gun fight escalated fast into all out war!
Ever look at your kid & just think '"uh oh!"

POPS on Route 66 is awesome!

Giant Snow cone? Yes please!
Speaking of summer! I decided after visiting the grocery store that I may be looking at drawing straws to see which one of the kids I'm going to have to give up for adoption after realizing just how much these little trash compactors eat!!!! Did I eat that much when I was a kid!?! They get up, eat breakfast, watch thirty min of cartoons, & then they are ready for a snack. They eat lunch, throw their plate away, get a snack, jump on the trampoline, come in for a snack, watch adventure time, have a snack, fight with each other, & then ask when dinner is going to be ready! AAAHHHH! :)

Thanks for reading!

     

Big Big News! {And An Awesome Give-A-Way!}

So, in case you didn't see it over on my Facebook page, twitter, or Instagram you should check out the article I was interviewed for in Slate Magazine! 

That was pretty awesome but the big big news is that on June 19th I will be interviewing Dr. Temple Grandin about her new book 'the Autistic Brain' Sooooooo, I'm pretty excited! As we speak I'm waiting for a copy to be delivered so I can jump into it. Her other books, if you have not read them, are amazing. Oh & did I mention that she is sending me an extra signed copy to give away to one of you all!!!! I'm so excited...& I jut can't hide it...I'm about to.....sorry, I got a bit carried away there & went all 1980's on you! 
    Stay tuned in the next couple of weeks for details, I will set the give away date & terms as soon as the book come in!